01893nas a2200241 4500000000100000008004100001260000900042100001300051700001200064700002200076700001800098700001800116700001600134700001100150700001700161245009100178856007900269300001100348490000900359050001600368520125300384022001401637 2013 d c20131 aPeters R1 aLusli M1 aMiranda-Galarza B1 avan Brakel WH1 aZweekhorst MB1 aDamayanti R1 aSeda F1 aBunders JG F00aThe meaning of leprosy and everyday experiences: an exploration in cirebon, indonesia. uhttp://www.ncbi.nlm.nih.gov/pmc/articles/PMC3615632/pdf/JTM2013-507034.pdf a5070340 v2013 aPETERS 20133 a
It is imperative to consider the meaning of leprosy and everyday experiences of people affected by leprosy and key persons in the community if one aims to make leprosy services more effective, which appears necessary in Indonesia given the large numbers of new cases detected annually. However, little is written in the international literature about the experiences of people currently being treated for leprosy, those cured, or other key informants. This paper analyses the narratives of the people by drawing upon in-depth interviews with 53 participants and 20 focus groups discussions. The participants were purposively selected. We provide insights into the experiences of people and the meaning they give to leprosy and highlight aspect of aetiology, spirituality, religion, darkening of the skin, and sorcery. We also examine experiences of seeking care and focused on the impact of the disease in particular on the elderly and children. In conclusion, the continued need for implementation of leprosy services in Indonesia is very evident. The diversities in people's experiences with leprosy indicate a demand for responsive leprosy services to serve the diverse needs, including services for those formally declared to be "cured."
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