01272nas a2200157 4500000000100000008004100001260004700042653002400089653001500113653001200128653001300140100001200153700001900165245008500184520084500269 2017 d bSAGE Publications Sage CA: Los Angeles, CA10aProgram Development10aDisability10aBeliefs10aBehavior1 aShurr J1 aHollingshead A00aDiversity, Severe Disability, and Family: A Systematic Review of the Literature.3 a

Understanding family challenges and perspectives are critical to effective programming and services for individuals with severe disabilities. Equally central, yet often overlooked, is the relationship between family challenges and diversity. This systematic review examined a set of peer reviewed literature published between 2002-2015 at the intersection of diversity, severe disability, and family for the purpose of identifying the foci, subjects, and research methods of such studies. Results indicated a bias toward studies on the impact of disability on the family, as well as disability beliefs and behaviors. In addition, a majority of articles reported mothers as the primary source of data and surveys as the primary method of data collection. Implications of the findings and directions for future research are explored.