02090nas a2200253   4500000000100000008004100001260002400042653001700066653002600083653001500109653001200124100001500136700001900151700001500170700001400185700001600199700001900215245008000234856006300314300001200377490000700389520141500396022002501811       2022                            d  bFapUNIFESP (SciELO)10aCell Biology10aDevelopmental Biology10aEmbryology10aAnatomy1 aVieira MCA1 aTeixeira MDGLC1 aSilva LAVD1 aMistura C1 aSarmento SS1 aMascarenhas AA00aEffects on the daily lives of children and teenagers who lived with leprosy  uhttps://www.scielosp.org/pdf/sdeb/2022.v46nspe6/124-134/en  a124-1340 v463 a<p>The study aims to understand the effects of the disease on the daily lives of children and teenagers affected by leprosy. This was a qualitative research based on the theoretical framework of ‘The Sociology of Erving Goffman’. We interviewed 14 participants individually, nine children and five teenagers, who underwent treatment for leprosy and were cured. A semi-structured interview was used, covering sociodemographic information and guiding questions about the participants’ experiences with the disease, family, social aspects, and perceptions derived from the experiences. The data were analyzed by the sociology of Erving Goffman. The narratives emphasized the effects on daily life related to leprosy discovery, interaction networks, such as family and health professionals, health care, overcoming strategies and expectations. It was verified that the predominant element of the research is anchored in the fear of being discovered and discredited, in the perspective of having their identity of health resignified, by the illness, and by the evidence in view of the participant’s experience due to prejudice, anonymity, and secret. This symbolically suggests that the participants experienced a certain construction of negative social life around leprosy. The illness directly interferes with their daily life and development, especially in the participant’s social relationships.</p>
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