This research aims to investigate factors favouring and those hindering self-reporting. Qualitative study was conducted from April 2018 to September 2019. Total 130 leprosy-affected people (LAP) were selected for in-depth interview (IDI) proportionately from 3 strata based on prevalence of leprosy and 23 professionals for key informant's interview (KII). A semi-structured in-depth interview guide was used to collect the data and recoded for analysis. 35% of the IDI respondents were female, and 65% were male. Around half of the respondents were from rural areas, 85% were married, and three-fourths (76%) were Muslim. Amongst them, 8% had self-reported to the leprosy hospital/ clinic for the diagnosis of Leprosy. Others had visited several different places for advice before receiving a diagnosis of Leprosy. Overall, 68% had detection delay >24months. The psychosocial factors that negatively influenced self-reporting are fear of being excluded from family, relatives, neighbours and society, and fear of being separated and divorced from spouse. The other reasons for not self-reporting are non-cooperation from family members, less knowledge on leprosy, lack of information and awareness on leprosy and treatment, lack of proper motivation, and problems relating to counselling and accessibility of the health centre. If LAP delay reporting for leprosy treatment for 2-years after first symptom, the patient's condition may deteriorate with onset of disability which could have been prevented. So, public awareness about leprosy and willingness to initiate a consultation for leprosy diagnosis may reduce the burden of disability.
BT - Indian Journal of Leprosy LA - ENG M3 - Article N2 -This research aims to investigate factors favouring and those hindering self-reporting. Qualitative study was conducted from April 2018 to September 2019. Total 130 leprosy-affected people (LAP) were selected for in-depth interview (IDI) proportionately from 3 strata based on prevalence of leprosy and 23 professionals for key informant's interview (KII). A semi-structured in-depth interview guide was used to collect the data and recoded for analysis. 35% of the IDI respondents were female, and 65% were male. Around half of the respondents were from rural areas, 85% were married, and three-fourths (76%) were Muslim. Amongst them, 8% had self-reported to the leprosy hospital/ clinic for the diagnosis of Leprosy. Others had visited several different places for advice before receiving a diagnosis of Leprosy. Overall, 68% had detection delay >24months. The psychosocial factors that negatively influenced self-reporting are fear of being excluded from family, relatives, neighbours and society, and fear of being separated and divorced from spouse. The other reasons for not self-reporting are non-cooperation from family members, less knowledge on leprosy, lack of information and awareness on leprosy and treatment, lack of proper motivation, and problems relating to counselling and accessibility of the health centre. If LAP delay reporting for leprosy treatment for 2-years after first symptom, the patient's condition may deteriorate with onset of disability which could have been prevented. So, public awareness about leprosy and willingness to initiate a consultation for leprosy diagnosis may reduce the burden of disability.
PY - 2024 SP - 143 EP - 157 T2 - Indian Journal of Leprosy TI - Factors that Influenced and Delayed Self-reporting and Registration of Leprosy Affected People in Different Prevalence Areas of Bangladesh UR - https://www.researchgate.net/profile/Qazi-Azad-Uz-Zaman/publication/384622360_Factors_that_Influenced_and_Delayed_Self-reporting_and_Registration_of_Leprosy_Affected_People_in_Different_Prevalence_Areas_of_Bangladesh/links/66ff9eda906bca2ac3dffc67/Factors ER -